We often hear about people who are dealing with family members or dear friends who are undergoing cancer treatment. Not only does cancer affect the patient, but it affects everyone that surrounds the patient- both family and friends. It’s a hard concept to deal with. The diagnosis rocks the patient’s world and those surrounding the patient. The patient doesn’t quite know what to do — other than go through treatment– but family and friends often are unaware of or can’t figure out the best ways to assist that person. Talk about a situation where a guide or book would be so helpful for the patient to read as well as anyone/everyone surrounding that patient.
Finally someone has written that book! Stan Goldberg, PHD, has an incredible resume/CV to his name that makes him the perfect author for his book: Loving, Supporting, and Caring for the Cancer Patient: A Guide to Communication, Compassion, and Courage .
That book and his CV make him the perfect person to pen a guest blog for us on tips on how to help a cancer patient– even if you aren’t a caregiver for this person, but a friend or relative who visits, it’s worth a read. This post is thoughtful, meaningful and will resonate with anyone who has spent time with a cancer patient and wondered how to best help them.
Helpful Ways to Support a Loved One with Cancer
By Stan Goldberg, PhD
Anyone who has been given a cancer diagnosis makes an immediate recalibration of every previously held ambition. Friends and loved ones often don’t understand how priorities held for a lifetime can change overnight when someone learns that he or she has cancer. Reactions to a cancer diagnosis, regardless of the prognosis, will vary according to personality, but each person will experience an onslaught of fear, worry, and uncertainty.
A recent report from the National Cancer Institute estimated 14 million people in the U.S. have had a cancer diagnosis, but that number is expected to grow to 19 million by 2024. More and more people must struggle with how to face the new reality of a life-threatening disease. And over on the sidelines, friends and loved ones struggle with how best to support them.
Today, cancer treatment is mostly given in outpatient treatment centers, not in hospitals, according to the American Cancer Society. This means someone is needed to be part of the day-to-day care of the person with cancer, and that ‘sicker’ people are being cared for at home. However, the presence alone of caregivers is just part of the support needed by cancer patients — the attitudes of the caregivers may be the most important variable.
Often, friends and family members struggle with what to say and do, and the person with cancer may be uncomfortable asking for or accepting help. The process of transitioning from independence to dependence will require much sensitivity and adaptation from all involved.
Consider these five approaches to supporting your loved one with cancer:
1. Actions are better than words.
Never miss the opportunity to express your compassion through words, but when possible, express compassion through actions. If your loved one enjoys watching birds outside her window, install a bird feeder to attract them. Drive her on any errands, and offer to let her stay in the car if she shows signs of fatigue.
2. Stay flexible on any engagements.
Welcome any invitations for outings, but if your loved one cancels an event, offer to stay with him despite his insistence that you go by yourself. Acknowledge the legitimacy of your loved one’s reasons for canceling.
3. Keep in mind that pain is subjective.
Think about the experience of pain as a runaway car going downhill without brakes. You, the driver, are consumed with fright as the car continues to pick up speed. The same thing happens with pain. A mistake some people make is using distractions in place of pain medication. Use a hospital-based 0-10 pain management continuum and accept the number your loved one provides.
4. Wait for your loved one to initiate difficult discussions.
Forcing a loved one or friend to “face reality,” whether it involves the acceptance of a chronic illness or her impending death, rarely is fruitful. Instead, it can create additional anxiety. Don’t force difficult discussions. Wait until your loved one is ready.
5. Go along with any decisions.
Many paths can lead to the same destination. Accept the approach your loved one chooses, regardless of whether you agree. Even if you think the decision could mean a life or death struggle will be lost, support your loved one’s beliefs. Don’t offer an opinion on what you would do in a similar position unless she asks.
Stan Goldberg, PHD, Bio * * *
Stan Goldberg, PhD, is Professor Emeritus of Communicative Disorders at San Francisco State University, and author of the new book, Loving, Supporting, and Caring for the Cancer Patient, A Guide to Communication, Compassion, and Courage (Roman + Littlefield, October 2016).
He is a prolific award-winning writer, editorial consultant and recognized expert in the area of cancer support, end-of-life issues, caregiving, chronic illnesses, aging and change. With more than 300 publications, presentations, workshops, and interviews, he garnered 22 national and international awards for his writing. Goldberg was a bedside volunteer at the internationally renowned Zen Hospice Project in San Francisco, as well as Hospice By The Bay, George Mark Children’s House and Pathways Home Health and Hospice.
Learn more at:stangoldbergwriter.com
LA-Story.com and I express our deep appreciation to Dr. Stan Goldberg for his great essay and his amazing book. Little things often take on greater importance than grand gestures. If you – or someone you know- is a cancer patient or family member or friend of a person with cancer, this book is worth the read! (After you read this post, of course!)
Stevie Wilson,
LA-Story.com
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